Devastating news

[rrrr]

He's out of surgery and his parents are in a post op conference. I don't know anything more. The stress is difficult to bear.

 

[monkeyswrench]

It can be said "It's in God's hands" or in the surgeons' hands. Whatever one chooses, it sounds like he is in good hands.

I'm not a man of science, or education in general. I have an odd system of beliefs, but they have helped me through life these past years. Hope for the best for yourself, and pray for the benefit of others.

He's out of surgery. That's the first step. There will be more...but one step at a time.

 

[DILLIGAF]

Tough to wait for updates....

It sounds like he is getting very good care which will put him in the best possible position to recover.

Hoping to hear tonight all went well

 

[rrrr]

Liam is being moved to a bed in the ICU. As I feared, the location of the tumor around his brain stem prevented the surgeons from a clean removal, and parts of it remain in his body.

I'm feeling completely helpless, and without words to comfort my brother and sister-in-law. She slept a few hours this afternoon, the first she has had in three days. This is horrible.

 

[SoCalDave]

This is a tough read for me. God bless him to be strong through this.

 

[RVR SWPR]

Liam is being moved to a bed in the ICU. As I feared, the location of the tumor around his brain stem prevented the surgeons from a clean removal, and parts of it remain in his body.

I'm feeling completely helpless, and without words to comfort my brother and sister-in-law. She slept a few hours this afternoon, the first she has had in three days. This is horrible.

Obvious your brother communicating with you and depends on you. He knows you will answer.Well Done rrrr.

 

[v6toy4x]

I have never wanted to tell people things like, "if there is anything I can do just ask" since there isn't really anything I can do for a complete stranger except to say, hope never ceases, every day something happens that most say could never happen. It is your job to try and support your nephew and your brother. It is mine and my families job to pray for Liam. We will do our part.

 

[DILLIGAF]

Hang in there and be strong for your family

 

[DrunkenSailor]

I have never wanted to tell people things like, "if there is anything I can do just ask" since there isn't really anything I can do for a complete stranger except to say, hope never ceases, every day something happens that most say could never happen. It is your job to try and support your nephew and your brother. It is mine and my families job to pray for Liam. We will do our part.

I struggle with this all the time some of the things I see on here just make me want to drop everything and help.

Stay strong rrr

 

[Sherpa]

praying for a full recovery for Liam.......... The power of prayer is amazing.....

--Sherpa

 

[hallett3]

Prayers to your family. I’m sure they will have more options on removing what they couldn’t get out. Surgeons and technology are so advanced in today’s world. Plus kids are tough as nails .

 

[LHC Kirby]

Absolutely prayers for the family heading your way

 

[DB / HAV]

We have been praying all day and we will continue to pray. I can’t imagine how hard this is for you and your family. It is really heart warming to see how many people are praying and pulling for Liam. God bless you all

 

[rrrr]

It's late, I can't sleep, but the words and thoughts of all of you are comforting. Thank you so much.

His mom just texted me and said he is awake, wiggling his toes, and asking questions. A great load has been lifted from me.

 

[BUDMAN]

Prayers to your nephew and family. Stay positive

 

[Dan Lorenze]

It's late, I can't sleep, but the words and thoughts of all of you are comforting. Thank you so much.

His mom just texted me and said he is awake, wiggling his toes, and asking questions. A great load has been lifted from me.

Great to hear

 

[Warlock1]

I truly believe in the power of positivity. As many good thoughts as I can think are headed your way....

 

[That Guy]

Prayers and positivity coming your way.....

 

[DrunkenSailor]

It's late, I can't sleep, but the words and thoughts of all of you are comforting. Thank you so much.

His mom just texted me and said he is awake, wiggling his toes, and asking questions. A great load has been lifted from me.

I am so happy to wake up to this. Great news.

 

[HNL2LHC]

Liam is being moved to a bed in the ICU. As I feared, the location of the tumor around his brain stem prevented the surgeons from a clean removal, and parts of it remain in his body.

I'm feeling completely helpless, and without words to comfort my brother and sister-in-law. She slept a few hours this afternoon, the first she has had in three days. This is horrible.

My wife had the same issue. They couldn’t pull out every thing. Hopefully they can now biopsy it and that will help with the treatment. Hopefully it is not cancerous. That was the case with my wife. It issue is that the DNA make up of her tumor could turn into cancer and possibility that it might have to go back in to remove later. They ended up being proactive, calling it cancer so health care would cover treatments. Be sure to have the parents record EVERY conversations with the doctors. This will be very helpful. Also is needed have a three party person join in meetings to help focus if it is hard for the parents. To this day we also have my mother in all meetings. The recordings and mother allow me to focus on my wife if needed.

Keep your head up and look for the best facilities and treatments.

 

[92562]

So glad to hear he is alert. The next important news will be the tissue biopsy and the waiting sucks. Still praying!

 

[nowski]

Liam is being moved to a bed in the ICU. As I feared, the location of the tumor around his brain stem prevented the surgeons from a clean removal, and parts of it remain in his body.

I'm feeling completely helpless, and without words to comfort my brother and sister-in-law. She slept a few hours this afternoon, the first she has had in three days. This is horrible.

First off continued thoughts and prayers to Liam, Family and Friends.

My wife's nephew had a brain tumor removed in his late teen years some twenty years ago. The results of his surgery sounds very similar to Liam's situation. The kid went on to lead a normal productive life and is still with us today. Continue to pray for Liam as we did and you'll see a miracle performed before your very eyes...

 

[AFTERSHOCK RACING+]

 

[was thatguy]

My wife had the same issue. They couldn’t pull out every thing. Hopefully they can now biopsy it and that will help with the treatment. Hopefully it is not cancerous. That was the case with my wife. It issue is that the DNA make up of her tumor could turn into cancer and possibility that it might have to go back in to remove later. They ended up being proactive, calling it cancer so health care would cover treatments. Be sure to have the parents record EVERY conversations with the doctors. This will be very helpful. Also is needed have a three party person join in meetings to help focus if it is hard for the parents. To this day we also have my mother in all meetings. The recordings and mother allow me to focus on my wife if needed.

Keep your head up and look for the best facilities and treatments.

This is very good advice.
This is the doctors jobs, but as family and patients it’s all a shock and rush of info that we can’t process. Especially in cases like Liams where it’s a bombshell.
It’s crucial to record these conversations or have a more “detached” person sit in and take notes.
As you well know, it’s all a blur right now.

Continuing the vigil and prayers today.

 

[MissB]

I don't have a lot to add, just know I'm sending lots of positivity for Liam and your family rrrr

 

[rrrr]

Today Liam is following commands to move his tongue and fingers. He has been extubated, and can speak softly. I haven't heard anything about the pathologist's report yet.

 

[Willie B]

... still sending prayers from this end...

 

[rivermobster]

First off continued thoughts and prayers to Liam, Family and Friends.

My wife's nephew had a brain tumor removed in his late teen years some twenty years ago. The results of his surgery sounds very similar to Liam's situation. The kid went on to lead a normal productive life and is still with us today. Continue to pray for Liam as we did and you'll see a miracle performed before your very eyes...

This is awesome news.

 

[v6toy4x]

Today Liam is following commands to move his tongue and fingers. He has been extubated, and can speak softly. I haven't heard anything about the pathologist's report yet.

Each time I come back to this thread I scan for your avatar in hopes of good news, this is good news!!

 

[havasujeeper]

Each time I come back to this thread I scan for your avatar in hopes of good news, this is good news!!

Me as well. Praying for great news soon.

 

[rrrr]

My brother called me. Liam took a couple of steps this afternoon, and seems to be progressing. His balance and speech are pretty good. I'm thrilled by this.

The pathologist's report won't come out until Friday or Monday. We danced around that a bit, I haven't asked anything about the prognosis, and my brother knows there may still be bad news ahead. I told him I'm supporting him and my sister-in-law, that's my concern now. Those answers will come, and they can't dwell on the outcome.

This is all very hard.

 

[HNL2LHC]

I am confident that he will heal up fast. He will be on some good meds and they will help out a lot but make him groggy. Just watch him because he will be feeling confident and want to walk. They will also what him up walking the next day. The steroids will go for a couple of weeks And they will give him energy. Wouldn‘t be surprised that he is out of the hospital by the end of the week and doing normal things within a week.

 

[pwerwagn]

Been thinkin about your nephew/family a lot the last couple days. Hoping for the best for you guys.

 

[92562]

I know we've never met but I find myself going to this thread first when I login, looking for good news. I am still praying for good outcomes and for peace and rest for the family.

 

[Rondog4405]

Positive vibes and prayers going out buddy!

 

[rrrr]

Liam has been cleared to walk from his bed to the room doorway twice a day.

I'll try to make updates to the thread every couple of days.

 

[v6toy4x]

more good news!!

 

[havasujeeper]

Im liking it!

 

[HNL2LHC]

Awesome news!!!! Just wait a couple of weeks and off the steroids. It will almost be like it never happened. Any word on the type of tumor and treatment coming up?

 

[rrrr]

The most incredible news...the tumor is a rare type that is benign and grows very slowly. Almost all it it was removed during surgery. The neurologist says no further treatment is indicated right now.

I have to say that this news was very emotional for me. I can't imagine the range of emotions my brother and sister-in-law have gone through in the last week.

I cannot tell you all how much your support has helped me get through this. I was terrified the outcome would not be good, and it was comforting to know the community was rallyed behind us. Thank you so much.

 

[buck35]

The most incredible news...the tumor is a rare type that is benign and grows very slowly. Almost all it it was removed during surgery. The neurologist says no further treatment is indicated right now.

I have to say that this news was very emotional for me. I can't imagine the range of emotions my brother and sister-in-law have gone through in the last week.

I cannot tell you all how much your support has helped me get through this. I was terrified the outcome would not be good, and it was comforting to know the community was rallyed behind us. Thank you so much.

The power of the people! Thoughts and prayers rrrr.

 

[Andy B.]

 

[4Waters]

The most incredible news...the tumor is a rare type that is benign and grows very slowly. Almost all it it was removed during surgery. The neurologist says no further treatment is indicated right now.

I have to say that this news was very emotional for me. I can't imagine the range of emotions my brother and sister-in-law have gone through in the last week.

I cannot tell you all how much your support has helped me get through this. I was terrified the outcome would not be good, and it was comforting to know the community was rallyed behind us. Thank you so much.

Hot damn that great news, been watching/waiting for this post.

 

[EmpirE231]

The most incredible news...the tumor is a rare type that is benign and grows very slowly. Almost all it it was removed during surgery. The neurologist says no further treatment is indicated right now.

I have to say that this news was very emotional for me. I can't imagine the range of emotions my brother and sister-in-law have gone through in the last week.

I cannot tell you all how much your support has helped me get through this. I was terrified the outcome would not be good, and it was comforting to know the community was rallyed behind us. Thank you so much.

great news!!

 

[v6toy4x]

Good things happen to good people. Liam appears to be a GREAT Kid, we wish him a speedy recovery!

 

[rivrrts429]

The most incredible news...the tumor is a rare type that is benign and grows very slowly. Almost all it it was removed during surgery. The neurologist says no further treatment is indicated right now.

I have to say that this news was very emotional for me. I can't imagine the range of emotions my brother and sister-in-law have gone through in the last week.

I cannot tell you all how much your support has helped me get through this. I was terrified the outcome would not be good, and it was comforting to know the community was rallyed behind us. Thank you so much.

Prayers work bud. Best news I’ve heard all week long. Awesome way to begin the weekend.

 

[HBCraig]

@rrrr
Good news

 

[DrunkenSailor]

So glad to hear this! Awesome news!

 

[attitude]

Nice!

 

[500bbc]

That is fantastic news!
God Bless