rivermobster
Club Banned
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- Dec 28, 2009
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The title of this thread says it all...
You are brave beyond words.
Peace![Folded hands :pray: 🙏](https://cdn.jsdelivr.net/joypixels/assets/6.6/png/unicode/64/1f64f.png)
You are brave beyond words.
Peace
![Folded hands :pray: 🙏](https://cdn.jsdelivr.net/joypixels/assets/6.6/png/unicode/64/1f64f.png)
AmenThe title of this thread says it all...
You are brave beyond words.
Peace![]()
I am saddened by your loss. This is my biggest fear. As parents of a medically complex child my wife and I hope to never have to make that decision. I hope you and your wife find solace in knowing your son is no longer in pain.My wife and I had to to make the same decision on 9/1/24 for our 23 old son. We know as parents what this journey is and the sadness that comes with that decision you are in my thoughts and prayers . Some days I just sit in silenceView attachment 1468500
That's a hard one my friend. I was tasked with those words a year ago. But mine was to end the life of my wife of 30 years and mother of my two children.This past Thanksgiving my wife and I welcomed our second daughter. She was rushed to the NICU for breathing issues but rapidly stabilized. The doctors said as she was a scheduled c section and hadn't gone through labor she most likely had fluid on her lungs which would need a day or two to evacuate and we'd be on our way. The next day we were told she had no gag reflex or swallowing reflex. They ran a brain ultra sound which showed brain deformities and we transferred to a speciality childrens hospital for further analysis. At this point we prepared ourselves to have a special needs child and many rdp peeps reached out in support of which i am very thankful for.
Over December they stabilized her breathing, feeding, and ran a bunch of test, brain mri, jaw evaluation, sleep study, eeg, genetic testing, ent scopes, eye exam, chest exams, and I'm sure some more.
This past Wednesday we had our consultation and we're told shell need a trach, feeding tube, breathing machine, her brain is 100% deformed so shell most likely be in a near vegetative state, require 24 hr a day care, be highly prone to infections, and never know who we are. The doctors without any prompting from us heavily suggested comfort care for her and to allow her to pass on. We spoke with our family Chaplin who put it as
"Would you want to live her life?" To which both my wife and I said no and he brought up not.asking her to then.
As such we elected for comfort care and baby Summer will begin her transition late next week after family and friends have a chance to meet her and say goodbye.
I would not wish all of this on Adolf Hitler. Everyone with little ones hug them tight.
Thank you to all the inmates that reached out during the beginning, it helped more then I can describe.
I was truly blown away by everyone that posted and reached out on this thread.
We had a few days for family and friends to meet/say good-bye to Summer. We decided after much thought that we wanted our 3 year old to meet her sister, in typical sibling fashion our three year threw a fit the whole time and wanted all the attention on her.
After medical support was removed Summer made it about 20 hours and passed without a peep which is what we wanted. This time was so special as she had no hoses, lines, etc. It was just like time spent with a normal new-born. The hardest part for me was when we went into the "transition room" and I realized she would never leave that room.
As my wife says we are "ok in a not ok space." We both have times where sadness comes over us and I expect this will continue for a long time/the rest of our lives. We both said the hardest part is that we've basically reverted back to our life pre-Summer and we both are sad at times when we realize we were supposed to have a new normal.