This past Thanksgiving my wife and I welcomed our second daughter. She was rushed to the NICU for breathing issues but rapidly stabilized. The doctors said as she was a scheduled c section and hadn't gone through labor she most likely had fluid on her lungs which would need a day or two to evacuate and we'd be on our way. The next day we were told she had no gag reflex or swallowing reflex. They ran a brain ultra sound which showed brain deformities and we transferred to a speciality childrens hospital for further analysis. At this point we prepared ourselves to have a special needs child and many rdp peeps reached out in support of which i am very thankful for.
Over December they stabilized her breathing, feeding, and ran a bunch of test, brain mri, jaw evaluation, sleep study, eeg, genetic testing, ent scopes, eye exam, chest exams, and I'm sure some more.
This past Wednesday we had our consultation and we're told shell need a trach, feeding tube, breathing machine, her brain is 100% deformed so shell most likely be in a near vegetative state, require 24 hr a day care, be highly prone to infections, and never know who we are. The doctors without any prompting from us heavily suggested comfort care for her and to allow her to pass on. We spoke with our family Chaplin who put it as
"Would you want to live her life?" To which both my wife and I said no and he brought up not.asking her to then.
As such we elected for comfort care and baby Summer will begin her transition late next week after family and friends have a chance to meet her and say goodbye.
I would not wish all of this on Adolf Hitler. Everyone with little ones hug them tight.
Thank you to all the inmates that reached out during the beginning, it helped more then I can describe.
Over December they stabilized her breathing, feeding, and ran a bunch of test, brain mri, jaw evaluation, sleep study, eeg, genetic testing, ent scopes, eye exam, chest exams, and I'm sure some more.
This past Wednesday we had our consultation and we're told shell need a trach, feeding tube, breathing machine, her brain is 100% deformed so shell most likely be in a near vegetative state, require 24 hr a day care, be highly prone to infections, and never know who we are. The doctors without any prompting from us heavily suggested comfort care for her and to allow her to pass on. We spoke with our family Chaplin who put it as
"Would you want to live her life?" To which both my wife and I said no and he brought up not.asking her to then.
As such we elected for comfort care and baby Summer will begin her transition late next week after family and friends have a chance to meet her and say goodbye.
I would not wish all of this on Adolf Hitler. Everyone with little ones hug them tight.
Thank you to all the inmates that reached out during the beginning, it helped more then I can describe.
are with you and your family and Summer.
